The game is going on, but we are on the road heading back home. We took the weekend to get away with my parents and step back. Mark and I took time and went to dinner alone. I'm not going to lie and say I'm not depressed-how could you not be depressed?
Mack had a transfusion on Friday and is acting fine, but making a two year old take huge amounts of medicine everyday is the worst of it all! We have to hold him down and force it down his little throat. Tonight my parents gave it to him in order for us to get a break. I could see in their eyes how much pain it brought. I just wish we could explain to him how it's making him better. We've tried everything. Every time we sneak it in some kind of food, he refuses to eat.
Other than that, we're all bracing for the week ahead. Tomorrow we get more blood drawn and wait. I hope to get everything in order. It's the little things you think could be done later when life isn't so crazy! Ha! Like that will ever happen. So tomorrow is a day I pay bills, get the dog and cat into the vet, call everyone that needs calling, and get our lives in order. Thank goodness for our MeMe for letting that all get done!
Mark was told on Friday, if Lincoln and Avery are a match, a transplant will happen. His white blood cell count has been too low for too long. If they're not then...I'm not sure. If they are then the whole process happens next week and our lives are on hold for a month-at the least!
Wednesday is an appointment. Not sure if its with Mack or just us. That will also determine the week. If we all go then our week is spent in St. Louis.
I'm trying hard to keep this updated, but its hard to put so much sadness on here. I realize so many people are using it to keep updated...so again, I want to do my best to keep this blog updated. The prayers are truly amazing and mark and I ask for more!
Here are some happy pictures of the little man and his siblings: