Finally, our doctors in St. Louis went on a search. They were worried because his numbers dropped fast. His cyclosporine levels were below 30 (they are supposed to be in the hundreds)- this is the medicine which will make his treatment work. On Tuesday, Mark got a call that a pharmacy in Illinois would try and make his medicine in a chewy tablet that taste good. By Thursday it arrived! Yes, it's too expensive and out of our means, but the past two times he had to take his medicine it was like a dream. He pops it in his mouth and there are no screams! This is all because of our doctors and this wonderful pharmacy who made it special for Mack. I am excited to see what his numbers will be on Monday.
|There is no after taste and they taste like cherry|
He fell asleep for about 2 hours of it in my arms. I will never complain about this time- it's rare to get to hold him for so long. Then, when he woke up, his nurse brought him a Popsicle!
Macklin, When you read this as you get older it will all be a memory-you are going to get through this horrible time and we will never look back! Just please keep taking your medicine!:) Love you buddy!