After a quick breakfast we were off to his appointment. There the doctor said he was still very hopeful about Mack and his progress...we were starting to worry a lot. My friend Meagan came to the appointment so I had extra ears and someone to explain things to me. She is also great at supporting us and loving Mack!
Dr. Wilson said the first sign that his treatment is working is the white blood cells rising (again, you can't get more white cells). He said that he didn't want to give us a time frame because he didn't want to freak us out, but because we are getting further out he said about three months is when we reassess a bone marrow transplant. Dr. Wilson also told us once his levels become normal we can expect to be on the medicine for another year, but after that he would be a normal little boy. That is mind boggling. Only 20% of people who have had this treatment have it come back and none have been our doctors patients.
Mark and I kept thinking a bone marrow transplant was where we were headed because we haven't had ANY good news in months.
After the appointment we were sent back in the transfusion room to play while we waited for his blood results. First they gave me his platelet number and I wasn't surprised when they weren't great, because again, that's what we're used to.
Then...the nurse came back and told us his ANC went from 180 to 1,160!!!!!!!!!!!!!!!!!!! I was in SHOCK! How is that possible?
Well, like the doctor told us, his white count would go first. If he stays in this range for two more weeks (I'm waiting for today's results now-and it just came in at 1,518-up it went again:):)) we can get off one of the medications.
I (we) finally have hope. I have finally been able to cry happy tears! This is the most amazing thing and proves miracles do happen. He is a miracle!
|This is at the hospital in Columbia-Avery got to come play with him|